This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

I-FPIES Names Four New Members to Medical Advisory Board

The International FPIES Association (I-FPIES) is proud to name four additional members to our Medical Advisory Board (MAB), which is comprised of the world’s leading experts on Food Protein-Induced Enterocolitis Syndrome (FPIES).

Our Medical Advisory Board is composed of allergists, immunologists, gastroenterologists and nutritionists who share a common purpose to create global collaboration for the diagnosis, treatment, management and advancement of FPIES. The MAB advises the organization on FPIES education, awareness and advocacy initiatives while also providing medical review of our web content and educational materials.

As part of our effort to advance awareness and understanding of FPIES, we’re thrilled to announce four new MAB members:

Andrew Bird 191x288J. Andrew Bird, MD

Assistant Professor of Pediatrics and Internal Medicine
UT Southwestern Medical Center
Children’s Medical Center Dallas
Dallas, TX

 

cianferoniAntonella Cianferoni, MD, PhD

Assistant Professor of Pediatrics
Children's Hospital of Philadelphia
Philadelphia, PA

 

georgeGeorge N. Konstantinou, MD, PhD, MSc

Department of Allergy and Clinical Immunology
424 General Military Training Hospital, Thessaloniki, Greece
Division of Allergy and Immunology, Jaffe Food Allergy Institute
Icahn School of Medicine at Mount Sinai
New York, NY

stephanie leonard mdStephanie Leonard, MD

Assistant Clinical Professor
Rady Children’s Hospital
Division of Allergy and Immunology
University of California, San Diego
San Diego, CA

 These additional members reflect the global and holistic nature of our initiatives and research. We are privileged and excited to partner with such an accomplished group of providers, researchers and thought leaders!

First International Consensus Guidelines Released for FPIES

The International FPIES Association (I-FPIES) is excited to announce the publication of the “International Consensus Guidelines for the Diagnosis and Management of Food Protein-Induced Enterocolitis Syndrome.” An executive summary has been published in The Journal of Allergy and Clinical Immunology (JACI), and the full document is available open access online.

DownloadButtonThese FPIES guidelines were designed to improve quality and consistency of care for FPIES patients by offering clinicians recommendations for disease diagnosis and management. The guidelines address the following topics: Definition and Clinical Manifestations, Epidemiology, Diagnosis, Gastrointestinal Manifestations, Acute Management, Nutritional Management, Natural History, and Future Needs.

The guidelines are the result of a three-year global collaboration led by the International FPIES Association and included the input of more than forty leading FPIES experts. Anna Nowak-Wegrzyn, MD, and Matt Greenhawt, MD, co-chaired the guidelines committee that led the effort to develop clinical questions about the diagnosis and management of FPIES. After extensive literature review and data extraction, draft recommendations were considered by an international expert panel that reached consensus on thirty recommendations.

I-FPIES Founder and President Fallon Schultz says, “Dozens of FPIES experts from across the globe volunteered their time and efforts to make the I-FPIES guidelines initiative a reality. These first ever, standard of care guidelines for FPIES will fill a significant clinical gap. And beyond that, the guidelines will highlight opportunities for future research, inform health care coverage policy, and lead to needed educational programs.”

The “International Consensus Guidelines for the Diagnosis and Management of Food Protein-Induced Enterocolitis Syndrome” were submitted to and approved by American Academy of Allergy, Asthma, and Immunology (AAAAI) as a Workgroup Report of the Adverse Reactions to Foods Committee.

The International FPIES Association has a global dissemination plan in place for the guidelines that includes outreach to various clinician groups, including allergists, gastroenterologists, pediatricians, ER physicians, allied health professionals, nurses, dietitians, as well as parents and relevant advocacy groups. There will also be a national outreach plan to reach every allergist in the United States.

For international outreach, the I-FPIES medical advisors and executive board will be traveling to major society meetings to educate providers worldwide, and the guidelines will be made available in multiple languages through the organization's partnerships.

To find out more about the FPIES guidelines, visit the I-FPIES website: http://fpies.org/index.php/about-fpies/fpies-guidelines

FPIES is a non-IgE gastrointestinal food allergy that manifests as delayed, profuse vomiting, often with diarrhea, acute dehydration, and lethargy. The most common triggers are milk and soy, but any food, even those thought to be hypoallergenic (e.g., rice and oat), can cause an FPIES reaction. Unlike most food allergies that produce immediate reactions such as swelling and hives, FPIES reactions are delayed and usually begin two hours after ingestion of the trigger food. In some cases, the child will have such an extreme reaction that they go into shock and need to be admitted to the ER for immediate treatment with intravenous fluids.

There is currently no cure or standardized treatment for FPIES. Unlike common food allergies, standard skin testing and blood testing for specific IgE allergies are routinely negative in FPIES patients. Early diagnosis and treatment are important for preventing FPIES reactions; however, reaching a diagnosis is often delayed.

About I-FPIES

The International FPIES Association (I-FPIES) is a 501(c)(3) non-profit organization whose mission is to improve the quality of life for patients and families affected by Food Protein-Induced Enterocolitis Syndrome (FPIES). I-FPIES is a worldwide leader in FPIES awareness and the issues surrounding this condition. We seek to increase awareness by providing educational resources, support services, advocacy, and the development of groundbreaking research through our partnership with the medical community. For more information, please visit www.fpies.org or contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

Let's Raise Feeding Tube Awareness!

ribbon 1

Love a tubie? Deciding whether tube feeding could be right for your FPIES child? This week, we’re honoring Feeding Tube Awareness Week®--a time to promote the positive benefits of tube feeding as a medical intervention that saves and enhances lives! The theme of the week in 2017 is “Fueling Life” because feeding tubes make it possible for those unable to eat or drink enough on their own to get the nutrition and hydration they need for life.

3561567The International FPIES Association (I-FPIES) is proud to be among the organizations participating in and supporting Feeding Tube Awareness Week®. The Feeding Tube Awareness Foundation is spreading the word about the life-changing impact of nutritional support. This week is also dedicated to raising awareness in the general public about the medical reasons children are tube fed, the day-to-day life of a tube-fed child, and connecting families in the tube-feeding community.

Below are some valuable links to mark Feeding Tube Awareness Week®:

The decision to tube feed can be a difficult one. This article from the Feeding Tube Awareness Foundation talks about making the choice, while this link provides a helpful overview about tube feeding. The Feeding Tube Awareness Foundation also provides this list of essential tube feeding resources for parents and caregivers to help in a child’s care.

If you love a tubie, we encourage you to raise awareness by changing your profile picture on social media to the image on the right. This week is also a great time to share your story and experience with tube feeding. Let's get the word out!

 

 

Join a Day of Giving

ifpiesgivingtuesdayThanksgiving is a day for giving thanks. Black Friday and Cyber Monday are days for getting deals. Now we have GivingTuesday, a day dedicated to giving back.
 
On Tuesday, November 29, 2016, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give. The International FPIES Association (I-FPIES) is proud to be a Partner Organization for the GivingTuesday movement.
 
If you love someone living with FPIES, honor them this Tuesday by making a tax-deductible donation to I-FPIES. Your gift will assist us in making a difference in the lives of FPIES patients and families through education, research, advocacy and support.
 
Thank you for thinking of us on #GivingTuesday!

Donate to the International FPIES Association (I-FPIES)


 

ICD-10 Code for FPIES Takes Effect on October 1, 2016!

The International FPIES Association (I-FPIES) is excited to share that the official diagnosis code (K52.21) for Food Protein-Induced Enterocolitis Syndrome (FPIES) will take effect in just a few weeks on October 1, 2016.

Dollarphotoclub 72702765 1ICD10 v2Securing the ICD-10 code was an ambitious initiative for the International FPIES Association (I-FPIES). The condition did not previously have a specific code, making it difficult for the medical community to determine how large a percentage of the population has FPIES. We proposed a new ICD-10-CM code to the National Center for Health Statistics (NCHS) in 2012.

The first specific diagnosis code for FPIES was approved in June 2013. The code did not take effect right away due to the delayed transition from the current ICD-9 coding system to the new ICD-10 coding system. The code was further delayed from its scheduled implementation in October 2015 due to a partial code freeze for ICD-10. I-FPIES leadership continued to advocate with the CDC and NCHS for the past year on behalf of our community to help ensure the code's implementation in 2016.

"The introduction of an individual code for FPIES is a critically important milestone for the patients and the medical professionals taking care of them. The code will enable more accurate diagnosis and allow for tracking the frequency of FPIES diagnosis. I am thrilled to see this happen because of the I-FPIES initiative."

Dr. Anna Nowak-Wegrzyn
I-FPIES Medical Chair and Associate Professor of
Pediatric Allergy and Immunology at Mt. Sinai

Make It Count! Using the Code
The ICD-10-CM coding system is an international classification system that groups related diseases and procedures for the purpose of reporting statistical information. ICD-10-CM codes provide a uniform language, and thereby serve as an effective means for reliable communication among physicians, patients, and third parties. ICD-10-CM codes are necessary for billing, insurance and medical records, disease management, treatment advances, research and national statistics.

As of October 1, 2016, FPIES can finally be coded properly, but only if your physician and hospital use the new code. Use of these codes is critical to tracking and understanding the healthcare burden associated with FPIES.

NCHS has classified the following code to designate FPIES:
K52.21: Food Protein-Induced Enterocolitis Syndrome

Bring this announcement with you to your next appointment and explain to your physician the importance of using the proper code.

A Brighter Future Ahead

"Approval of this ICD-10-CM code is exciting because it helps make theunknown known. It will allow for accurate classification of this condition and bring awareness of FPIES to a whole new level."

Fallon Schultz
I-FPIES Founder and President

In 2012, our commuity helped us write a key page in the history for FPIES. Every letter or e-mail sent on behalf of a child with FPIES made an impact. And because of our collective voice, families who walk the same road in the future will be less likely to suffer from delayed diagnosis or a lack of treatment opportunities. Knowledge, awareness, research, funding: we are only beginning to know the reach this code will have.

Make A Difference

I-FPIES relies on the generosity of our supporters.

Donate today and let's change the future of FPIES.

Donate Now

Could It Be FPIES?

Learn from the experts about symptoms, diagnosis and treatment.

Read More

FPIES Diagnosis? We Can Help.

Start here for resources and support to navigate the journey.

Read More