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The International FPIES Association (I-FPIES) is a recognized 501(c)3 patient advocacy organization focused on providing evidenced-based, credible, reliable and medically sound information derived from evidence-based research and practices.

I-FPIES's research agenda includes peer-reviewed grants to allergists, immunologists, gastroenterologists, and other medical providers with a particular interest in Food Protein-Induced Enterocolitis Syndrome (FPIES). Our research initiatives are aimed at promoting early detection techniques, understanding the condition, and developing a streamlined approach to treating FPIES patients.

Within the first three years of our organization's development, I-FPIES accomplished the following milestones on behalf of the FPIES community:

  • Creation of a specific ICD-10-CM code for Food Protein-Induced Enterocolitis Syndrome;
  • Development of evidence-based diagnostic and treatment guidelines for FPIES;
  • Establishment and advancement of broad-based educational programs for patients, families and treating physicians;
  • Strategic partnerships with professional organizations, including the American Academy of Allergy, Asthma & Immunology. (AAAAI), the National Organization for Rare Disorders (NORD), American College of Allergy, Asthma & Immunology (ACAAI), the American Academy of Pediatrics (AAP), and the American College of Emergency Physicians (ACEP).

To continue with the spirit and mission of the organization, I-FPIES has expanded our goals to include:

  • Development of peer-reviewed young investigator awards with major medical organizations;
  • Promotion of research that develops an evidence-based understanding of the pathophysiology, prevalence, epidemiology, and long-term outcomes of FPIES;
  • Supportive funding for early detection and diagnostic tools;
  • Raise Congressional awareness of the research funding disparity for food allergic disorders, including FPIES, and advocate for increased allocation of funds to the National Institutes of Health (NIH);
  • Increased and collaborative recognition of FPIES in university hospitals, clinics, and private practices;
  • Active participation in a provider and patient reported global registry;
  • Decreasing the time for onset of symptoms to diagnosis via worldwide outreach to educate providers, patients and families about FPIES;
  • Engage with Capitol Hill and legislative regulation for the practical needs of those living with FPIES;
  • Enhanced public recognition of the FPIES through educational program development and outreach services;
  • Creation of an official FPIES call center to better support and assist physicians and families.

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