On June 5, the International FPIES Association and 13 other food allergy advocacy organizations joined for a call with the Food and Drug Administration (FDA) as we continue to work together with the agency regarding its temporary food labeling guidelines in response to supply chain issues and shortages resulting from the COVID-19 pandemic.
Accurate food labeling is critical to prevent severe allergic reactions among those with FPIES and other food allergies. FPIES patients and families depend on them to avoid certain foods and prevent reactions.
To protect those with uncommon allergies, the coalition is asking the FDA to require food companies to publicly disclose “any” food substitutions they make in their products by announcing it on their websites and social media. Under the new guidance from the FDA, the top 8 major allergens and 5 other priority allergens should not be substituted.
Read the letter that the coalition sent to the FDA about these guidelines prior to our meeting.
There’s still time to share how this change may impact FPIES families. If you haven’t submitted your comments to the FDA, please do so here. Your voice matters, and the collective voice of the FPIES community and the broader food allergy community is making a difference!
Our thanks to the Asthma & Allergy Foundation of America for organizing this collaboration with the FDA and our other coalition partners for helping to ensure that those with any type of food allergy stay safe and healthy.