Change & make better world
Change & make better world
The International FPIES Association (I-FPIES) strives to be the worldwide leader in advocacy, policy and legislative efforts to one day eradicate the challenges of living with Food Protein-Induced Enterocolitis Syndrome (FPIES). Our proactive advocacy agenda aims to address the many areas in which patients and families are impacted by FPIES: in medical settings, insurance reimbursement, school and childcare settings, pharmaceutical intervention, as well as restaurants, work, travel and emergency settings.
Our organization spent years spearheading the successful campaign for a specific diagnostic code for FPIES. Implementation of the official ICD-10-CM code in October of 2016 will help patients and families gain access to insurance reimbursement, coverage of pharmaceutical interventions, and a better understanding of the prevalence and incidence of FPIES, leading to improved diagnosis and effective management of the disorder.
Learn more about our ongoing advocacy efforts on behalf of FPIES patients and families, including our formula coverage efforts and the annual National FPIES Awareness Day (May 4th).
I-FPIES also serves as a liaison between the FPIES patient community and the institutions that have a direct impact on their health, including:
Together with the National Organization for Rare Disorders (NORD) and other advocacy partners, I-FPIES lobbies legislators to initiate and support policies and bills to improve the quality of life for patients and families affected by FPIES. We are hard at work to initiate policies and laws that will provide relief and support to our community. I-FPIES is also the official FPIES lay organization of the American Academy of Allergy, Asthma & Immunology (AAAAI).
It is our goal to ensure cohesion and involvement in advocacy for FPIES on every continent. I-FPIES partners with the following organizations to support the patients and families we represent on a global level:
American Academy of Allergy, Asthma & Immunology (AAAAI): www.aaaai.org
American College of Allergy, Asthma & Immunology (ACAAI): www.acaai.org
American Academy of Pediatrics (AAP): www.aap.org
European Academy of Allergy and Clinical Immunology (EAACI): www.eaaci.org
World Allergy Organization (WAO): worldallergy.org
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPHGAN): www.naspghan.org
National Organization for Rare Disorders (NORD): www.rarediseases.org
Australasian Society of Clinical Immunology and Allergy (ASCIA): http://www.allergy.org.au/
Asia Pacific Association of Allergology and Clinical Immunology (APAACI): http://www.apaaaci.org/
*****Add Medical Nutrition Equity Act
Formula Coverage Resources
Children’s MAGIC, States with Elemental Formula Coverage: http://childrensmagicus.org/coverage-states/
Insurance Coverage Inequality: http://childrensmagicus.org/coverage-inequality/
Need a helping hand? Learn about Children’s Medical Nutrition Alliance’s Fund for Food and Families: http://cmnua.org/fund-food-families