Food Protein-Induced Enterocolitis Syndrome (FPIES) is a physical condition but it comes with emotional—and relationship—issues too. Interactions with family, friends, and even strangers can get mucky and hard. When communication breaks down and things get tense, it’s easy to assume those on the other side are heartless, ignorant or simply lack empathy, right? Even for … Continue reading Building a Bridge to Understanding: Relationships and FPIES
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Some of you read that title and looked at me cross-eyed, too tired to give me a response. Some of you are looking up from your knees while cleaning up a pile of puke that splashed all over your living … Continue reading Are You Having Fun Yet?
A Smiling Face Is Half the Meal* * A Latvian Proverb Featured blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series Carrots and Peaches OR Peaches and Carrots However you order it, it still lacks…variety. THIS is the life of FPIES. Right? And this was our story, for sure. Bella … Continue reading A Smiling Face Is Half the Meal
In this guest post to mark National FPIES Awareness Day, Christine Hayes Quigley shares her family’s special journey to thank those who helped make this day possible. One year after Senate Resolution 129 passed, declaring May 4 as National FPIES Awareness Day, our family had the opportunity to visit the office of Senator Booker (D-NJ) … Continue reading Sharing Gratitude and Awareness
National FPIES Awareness Day is on May 4th, and there are plenty of simple, proactive ways that you can make a difference. 1. Go Teal and Gray Download and display the official FPIES Awareness Ribbon (shown right) as your social media profile picture. The FPIES ribbon is a twist on the solid teal Food Allergy … Continue reading 4 Easy Things You Can Do NOW for National FPIES Awareness Day!
The International FPIES Association (I-FPIES) is excited to share that the official diagnosis code (K52.21) for Food Protein-Induced Enterocolitis Syndrome (FPIES) will take effect on October 1, 2016. Securing the ICD-10 code was an ambitious initiative for the International FPIES Association (I-FPIES). The condition did not previously have a specific code, making it difficult for … Continue reading ICD-10 Code for FPIES Takes Effect on October 1, 2016!
Love a tubie? Deciding whether tube feeding could be right for your FPIES child? This week, we’re honoring Feeding Tube Awareness Week®–a time to promote the positive benefits of tube feeding as a medical intervention that saves and enhances lives! The theme of the week in 2017 is “Fueling Life” because feeding tubes make it … Continue reading Let’s Raise Feeding Tube Awareness!
Did you know you can help the International FPIES Association (I-FPIES) continue to advance this condition and support FPIES patients and families throughout the year? We have 10 easy, creative ways to fundraise for I-FPIES and make an impact: 1. LET THE PIES FLY FOR FPIES: Invite friends, family members, and co-workers to join you … Continue reading 10 Simple Fundraising Ideas to Fight FPIES
In this guest blog post, FPIES mom Courtney Lopez shares how she’s getting ready for the holidays and offers some helpful tips to make them FPIES-friendly. This Thanksgiving is the first real holiday that our daughter can eat solid foods, but it’s also the year she was diagnosed with FPIES. We try to make every … Continue reading Celebrating the Holidays with FPIES
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