International FPIES Association launches multi-functional electronic platform with FREE video content for patients and caregivers and healthcare providers The International FPIES Association (I-FPIES), the leading nonprofit organization representing patients and families living with Food Protein-Induced Enterocolitis Syndrome (FPIES), has launched the FPIES University Video Library (www.FPIESUniversity.org), a resource featuring dozens of free videos on FPIES … Continue reading The FPIES University Video Library Offers New Educational Resources
A Message on COVID-19 from I-FPIES
The members of the International FPIES Association’s Medical Advisory Board are reaching out to the FPIES community to provide information and comfort in the face of the COVID-19 pandemic. We are all worried by the scope and spread of the coronavirus infection. We are saddened by the news from China, Italy, and other countries with … Continue reading A Message on COVID-19 from I-FPIES
I See You
It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our support! My alarm went off for the seventh and a half time. I was so deeply buried into the process of waking up and hidden … Continue reading I See You
Esteemed Food Allergy Consultant to Help Shape the Future of I-FPIES
The International FPIES Association (I-FPIES) is pleased to announce that Mary Jane Marchisotto, a widely recognized figure in the food allergy community, will be providing advisory services to the organization. Her focus will be expanding I-FPIES research initiatives and guiding the growth and position of I-FPIES as a global leader in advancing food protein-induced enterocolitis … Continue reading Esteemed Food Allergy Consultant to Help Shape the Future of I-FPIES
Merry and Bright
Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. In this post, she looks back on her journey from a season of fear to a season of joy. What’s trace? I asked the doctor at our first appointment at University of Michigan. Trace is trace, he stated. You … Continue reading Merry and Bright
Open Access: EAACI’s Pediatric Allergy & Asthma Meeting
You can now find all posters, webcasts and presentations from EAACI’s Pediatric Allergy & Asthma Meeting on the EAACI Media Library! We’ve linked all the FPIES-related posters and presentations from #PAAM2019, held this past October in Florence. Please note that the EAACI Media Library content is free and open access but does require you to … Continue reading Open Access: EAACI’s Pediatric Allergy & Asthma Meeting
Gearing Up for the Holidays
In this throwback post, we’re re-sharing helpful tips from featured blogger Kaylee Page to prepare for an FPIES-friendly holiday season while also creating lasting memories. I’ve shared this in a previous post. That time when I buried my face in my hands and sobbed at the Thanksgiving table. I had set a goal of Bella … Continue reading Gearing Up for the Holidays
I-FPIES Marks Our 8-Year Anniversary: You Make It Possible
This week, the International FPIES Association (I-FPIES) marked eight years of service to the FPIES community. In that time, I-FPIES has taken pride in being an advocate for patients and families living with food protein-induced enterocolitis syndrome. Our efforts in the areas of research, education, support, and advocacy have played a significant role in advancing … Continue reading I-FPIES Marks Our 8-Year Anniversary: You Make It Possible
New FPIES Book Published!
Big news! A new, first-of-its-kind book has been published on FPIES! Food-Protein Induced Enterocolitis Syndrome: Diagnosis and Management is comprehensive guide to the condition, featuring 17 chapters from leading experts in FPIES care and research. “This book will be an ideal reference for allergists, pediatricians, family practice clinicians, gastroenterologists, nutritionists, and all other health care providers … Continue reading New FPIES Book Published!
Generosity Makes an Impact! Q&A with the Baker Family
This week, the International FPIES Association announced a new study to investigate the intestinal microbiome of the infants with FPIES, led by Principal Investigator and I-FPIES Medical Advisory Chair Anna Nowak-Węgrzyn, MD, PhD. The findings may result in the development of a novel approach to treat FPIES and potentially prevent FPIES in infants at risk. … Continue reading Generosity Makes an Impact! Q&A with the Baker Family