A webinar on the FPIES guidelines is coming to AAAAI’s Continuing Education Center. Attendees can learn how to put the guidelines into practice for the diagnosis and management of FPIES. Wednesday, March 28, 2018 at 1:00 PM Eastern Time Register at: https://education.aaaai.org/rsl/18IFPIES Note that this webinar is ONLY for medical providers. Please share this link … Continue reading New FPIES Education Opportunity for Medical Providers!
It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our support! My alarm went off for the seventh and a half time. I was so deeply buried into the process of waking up and hidden … Continue reading I See You
Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. Today, she looks back on her journey from a season of fear to a season of joy. What’s trace? I asked the doctor at our first appointment at University of Michigan. Trace is trace, he stated. You need to … Continue reading Merry and Bright
In this post, featured blogger Kaylee Page shares helpful tips to prepare for an FPIES-friendly holiday season while also creating lasting memories. I’ve shared this in a previous post. That time when I buried my face in my hands and sobbed at the Thanksgiving table. I had set a goal of Bella chewing her first … Continue reading Gearing Up for the Holidays
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Mom, when we making bagels? Mom, I wanna another bagel? Mom, can I get sum-uv-dat bagel again? What Bella calls a bagel is actually a donut. But I can’t convince her otherwise! She has outgrown her FPIES triggers and had … Continue reading This Thing Called Normal
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. I had BIG plans for my maternity leave. I was going to work out, get that pre-pregnancy body back! Cuddle and coo over my little bundle of joy. And I was going to have people over for tea and crumpets … Continue reading The Quiet
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Today, she looks at how we can get beyond the FPIES label and enjoy our children fully. “All I ever really knew about Bella was: her food, her food, her food. And I think everyone who interacts with Bella has … Continue reading More Than FPIES
Featured blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. I’m here at FABlogCon. It’s a conference for food allergy bloggers. But it’s so much more. There are bloggers, speakers, authors and medical experts. There are people working real hard to bring innovation to the allergy world. Like gluten test … Continue reading DO ONE THING: Notes from FABlogCon
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a physical condition but it comes with emotional—and relationship—issues too. Interactions with family, friends, and even strangers can get mucky and hard. When communication breaks down and things get tense, it’s easy to assume those on the other side are heartless, ignorant or simply lack empathy, right? Even for … Continue reading Building a Bridge to Understanding: Relationships and FPIES
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Some of you read that title and looked at me cross-eyed, too tired to give me a response. Some of you are looking up from your knees while cleaning up a pile of puke that splashed all over your living … Continue reading Are You Having Fun Yet?