In this throwback post, we’re re-sharing helpful tips from featured blogger Kaylee Page to prepare for an FPIES-friendly holiday season while also creating lasting memories. I’ve shared this in a previous post. That time when I buried my face in my hands and sobbed at the Thanksgiving table. I had set a goal of Bella … Continue reading Gearing Up for the Holidays
This week, the International FPIES Association (I-FPIES) marked eight years of service to the FPIES community. In that time, I-FPIES has taken pride in being an advocate for patients and families living with food protein-induced enterocolitis syndrome. Our efforts in the areas of research, education, support, and advocacy have played a significant role in advancing … Continue reading I-FPIES Marks Our 8-Year Anniversary: You Make It Possible
Big news! A new, first-of-its-kind book has been published on FPIES! Food-Protein Induced Enterocolitis Syndrome: Diagnosis and Management is comprehensive guide to the condition, featuring 17 chapters from leading experts in FPIES care and research. “This book will be an ideal reference for allergists, pediatricians, family practice clinicians, gastroenterologists, nutritionists, and all other health care providers … Continue reading New FPIES Book Published!
This week, the International FPIES Association announced a new study to investigate the intestinal microbiome of the infants with FPIES, led by Principal Investigator and I-FPIES Medical Advisory Chair Anna Nowak-Węgrzyn, MD, PhD. The findings may result in the development of a novel approach to treat FPIES and potentially prevent FPIES in infants at risk. … Continue reading Generosity Makes an Impact! Q&A with the Baker Family
Today is our 5th Annual National FPIES Awareness Day! This day is dedicated to creating and raising awareness about Food Protein-Induced Enterocolitis Syndrome (FPIES). Show your support today, and follow these easy steps to join the movement: ü Go Teal and Gray: Wear teal and gray, the colors of the FPIES awareness ribbon ü Educate … Continue reading It’s National FPIES Awareness Day!
Our 5th Annual National FPIES Awareness Day is Saturday, May 4th! Here are a few simple ways you can make an impact and raise the level of education and awareness about FPIES: 1. Color It Up! Print our awareness day coloring pages and upload a photo of your child with their colorful creation to help … Continue reading 5 Easy Things You Can Do to Support National FPIES Awareness Day on May 4th!
In late February, the International FPIES Association (IFPIES) attended and exhibited at our seventh Annual Meeting of the American Academy of Allergy, Asthma, and Immunology (AAAAI). We’re pleased to bring you all the FPIES-related updates from the conference, which brings together thousands of allergists, gastroenterologists, immunologists, allied health and related healthcare professionals from across the … Continue reading FPIES Highlights from the AAAAI Annual Meeting
If you’re the parent of a child who has FPIES (or who has recently outgrown it), IFPIES has an exciting opportunity to participate in FPIES research! Visit this link to take part in this survey on quality of life that will have an immediate impact on our understanding of FPIES and its burden on patients … Continue reading New Research Survey: Quality of Life and FPIES
This year, in support of #GivingTuesday on November 27, 2018, Facebook is partnering with PayPal to match up to $7 million in donations made on Facebook to eligible US-based 501(c)(3) nonprofits. Will You Help the International FPIES Association (IFPIES)? ALL Facebook funds raised for IFPIES on #GivingTuesday will help fund our vital research, support, education, and advocacy … Continue reading $7 Million Match for #GivingTuesday on 11/27!
Today, the International FPIES Association (I-FPIES) marks our 7th anniversary. When our organization was founded, FPIES was an invisible condition. Since then, significant progress has been made on every front in advancing FPIES, from awareness and support to advocacy and scientific research. Working together, our dedicated volunteers and medical advisors have brought about major change … Continue reading I-FPIES Marks 7 Years of Serving Families and Providers