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International FPIES Association

International FPIES Association

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Tag: Kaylee Page

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I See You

I See You

Posted on February 29, 2020January 19, 2023Categories Blog, Posts, What's NewTags Kaylee Page, Life with FPIES, Rare Disease Day

It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our … Continue reading I See You

Merry and Bright

Merry and Bright

Posted on December 15, 2019December 20, 2019Categories Blog, PostsTags Holidays with FPIES, Kaylee Page, Life with FPIES

Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. In this post, she looks back on her journey from a season of fear … Continue reading Merry and Bright

Gearing Up for the Holidays

Gearing Up for the Holidays

Posted on November 25, 2019November 27, 2019Categories Blog, PostsTags Holidays with FPIES, Kaylee Page

In this throwback post, we’re re-sharing helpful tips from featured blogger Kaylee Page to prepare for an FPIES-friendly holiday season while also creating lasting memories. I’ve shared this in a … Continue reading Gearing Up for the Holidays

Get Your Copy of Pursey’s FPIES Surprise

Get Your Copy of Pursey’s FPIES Surprise

Posted on May 12, 2018January 19, 2023Categories Blog, News and Updates, Posts, What's NewTags Kaylee Page, Life with FPIES, Pursey’s FPIES Surprise, School and Daycare

The 1st children’s book for FPIES is now back in print and available on fpies.org! Get your copy of “Pursey’s FPIES Surprise,” a full-color book by Kaylee Page that introduces … Continue reading Get Your Copy of Pursey’s FPIES Surprise

Bedtime with Bella Series, Episode 1

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Pursey’s FPIES Suprise” by Kaylee Page Theme: What it means to be brave, how to try new foods, the beauty of advocacy and how sometimes we have to try and … Continue reading Bedtime with Bella Series, Episode 1

Bedtime with Bella Series, Episode 2

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Ira Sleeps Over” Theme: How we each have our own fears and what it means to be brave

Bedtime with Bella Series, Episode 3

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Alexander and the Terrible, Horrible, No Good, Very Bad Day” Theme: How some FPIES days are really, really hard and how a bad moment doesn’t mean a bad day

Bedtime with Bella Series, Episode 4

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Green Eggs and Ham” by Dr. Seuss Theme: How we feel about trying new foods 

Bedtime with Bella Series, Episode 5

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Whistle for Willie” by Ezra Jack Keats Theme: What’s hard for us when it comes to food

Bedtime with Bella Series, Episode 6

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Bedtime with Bella, Kaylee Page, Video LIbrary

“Click Clack Moo, Cows that Type” AND “One Fish, Two Fish, Red Fish, Blue Fish” Theme: Finding your voice and learning how to advocate for yourself 

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Recent Posts

  • Study on Gut Bacteria in FPIES Seeks Non-Allergic Infants as Comparison January 25, 2023
  • Adults with FPIES: New Online Research Questionnaire December 23, 2022
  • NIH Awards $2.5 Million Grant to FPIES Study December 7, 2022
  • Study on Gut Bacteria in FPIES Seeks Non-allergic Infants as Comparison October 6, 2022
  • FPIES Added to CoFAR Scope of Research September 29, 2022

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