It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our support! My alarm went off for the seventh and a half time. I was so deeply buried into the process of waking up and hidden … Continue reading I See You
Merry and Bright
Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. In this post, she looks back on her journey from a season of fear to a season of joy. What’s trace? I asked the doctor at our first appointment at University of Michigan. Trace is trace, he stated. You … Continue reading Merry and Bright
Gearing Up for the Holidays
In this throwback post, we’re re-sharing helpful tips from featured blogger Kaylee Page to prepare for an FPIES-friendly holiday season while also creating lasting memories. I’ve shared this in a previous post. That time when I buried my face in my hands and sobbed at the Thanksgiving table. I had set a goal of Bella … Continue reading Gearing Up for the Holidays
Get Your Copy of Pursey’s FPIES Surprise
The 1st children’s book for FPIES is now back in print and available on fpies.org! Get your copy of “Pursey’s FPIES Surprise,” a full-color book by Kaylee Page that introduces a different kind of food allergy in a fun, educational way. It’s also a great way to introduce FPIES to a classroom or daycare environment. … Continue reading Get Your Copy of Pursey’s FPIES Surprise
Bedtime with Bella Series, Episode 1
“Pursey’s FPIES Suprise” by Kaylee Page Theme: What it means to be brave, how to try new foods, the beauty of advocacy and how sometimes we have to try and try, and just keep trying
Bedtime with Bella Series, Episode 2
“Ira Sleeps Over” Theme: How we each have our own fears and what it means to be brave
Bedtime with Bella Series, Episode 3
“Alexander and the Terrible, Horrible, No Good, Very Bad Day” Theme: How some FPIES days are really, really hard and how a bad moment doesn’t mean a bad day
Bedtime with Bella Series, Episode 4
“Green Eggs and Ham” by Dr. Seuss Theme: How we feel about trying new foods
Bedtime with Bella Series, Episode 5
“Whistle for Willie” by Ezra Jack Keats Theme: What’s hard for us when it comes to food
Bedtime with Bella Series, Episode 6
“Click Clack Moo, Cows that Type” AND “One Fish, Two Fish, Red Fish, Blue Fish” Theme: Finding your voice and learning how to advocate for yourself