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International FPIES Association

International FPIES Association

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Tag: Life with FPIES

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I See You

I See You

Posted on February 29, 2020January 19, 2023Categories Blog, Posts, What's NewTags Kaylee Page, Life with FPIES, Rare Disease Day

It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our … Continue reading I See You

Merry and Bright

Merry and Bright

Posted on December 15, 2019December 20, 2019Categories Blog, PostsTags Holidays with FPIES, Kaylee Page, Life with FPIES

Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. In this post, she looks back on her journey from a season of fear … Continue reading Merry and Bright

Get Your Copy of Pursey’s FPIES Surprise

Get Your Copy of Pursey’s FPIES Surprise

Posted on May 12, 2018January 19, 2023Categories Blog, News and Updates, Posts, What's NewTags Kaylee Page, Life with FPIES, Pursey’s FPIES Surprise, School and Daycare

The 1st children’s book for FPIES is now back in print and available on fpies.org! Get your copy of “Pursey’s FPIES Surprise,” a full-color book by Kaylee Page that introduces … Continue reading Get Your Copy of Pursey’s FPIES Surprise

Normal (Kaylee Page)

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Kaylee Page, Life with FPIES, Video LIbrary

Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey. See Your Child 

We Can Do (FPIES) Relationships (Kaylee Page)

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Kaylee Page, Life with FPIES, Video LIbrary

Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey.

See Your Child (Kaylee Page)

Posted on December 9, 2017December 13, 2017Categories Video LibraryTags Kaylee Page, Life with FPIES, Video LIbrary

Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey.

This Thing Called Normal

Posted on December 9, 2017December 13, 2017Categories BlogTags Kaylee Page, Life with FPIES

Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Mom, when we making bagels? Mom, I wanna another bagel? Mom, can I get sum-uv-dat … Continue reading This Thing Called Normal

More Than FPIES

Posted on December 9, 2017December 13, 2017Categories BlogTags Kaylee Page, Life with FPIES

Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Today, she looks at how we can get beyond the FPIES label and enjoy our … Continue reading More Than FPIES

DO ONE THING: Notes from FABlogCon

Posted on December 9, 2017December 13, 2017Categories BlogTags Advocacy, Kaylee Page, Life with FPIES

Featured blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. I’m here at FABlogCon. It’s a conference for food allergy bloggers. But it’s so much … Continue reading DO ONE THING: Notes from FABlogCon

Building a Bridge to Understanding: Relationships and FPIES

Posted on December 9, 2017December 13, 2017Categories BlogTags Kaylee Page, Life with FPIES

Food Protein-Induced Enterocolitis Syndrome (FPIES) is a physical condition but it comes with emotional—and relationship—issues too. Interactions with family, friends, and even strangers can get mucky and hard. When communication … Continue reading Building a Bridge to Understanding: Relationships and FPIES

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Recent Posts

  • Study on Gut Bacteria in FPIES Seeks Non-Allergic Infants as Comparison January 25, 2023
  • Adults with FPIES: New Online Research Questionnaire December 23, 2022
  • NIH Awards $2.5 Million Grant to FPIES Study December 7, 2022
  • Study on Gut Bacteria in FPIES Seeks Non-allergic Infants as Comparison October 6, 2022
  • FPIES Added to CoFAR Scope of Research September 29, 2022

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