The 1st children’s book for FPIES is now back in print and available on fpies.org! Get your copy of “Pursey’s FPIES Surprise,” a full-color book by Kaylee Page that introduces a different kind of food allergy in a fun, educational way. It’s also a great way to introduce FPIES to a classroom or daycare environment. … Continue reading Get Your Copy of Pursey’s FPIES Surprise
I See You
It’s Rare Disease Day! Today, we share this post by our Featured Blogger Kaylee Page in recognition of all families living with rare disease. We see you and send our support! My alarm went off for the seventh and a half time. I was so deeply buried into the process of waking up and hidden … Continue reading I See You
Merry and Bright
Our Featured Blogger Kaylee Page shares her perspective on life with FPIES in a special series. Today, she looks back on her journey from a season of fear to a season of joy. What’s trace? I asked the doctor at our first appointment at University of Michigan. Trace is trace, he stated. You need to … Continue reading Merry and Bright
Normal (Kaylee Page)
Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey. See Your Child
We Can Do (FPIES) Relationships (Kaylee Page)
Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey.
See Your Child (Kaylee Page)
Join featured blogger Kaylee Page for this series of video segments about navigating the FPIES journey.
This Thing Called Normal
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Mom, when we making bagels? Mom, I wanna another bagel? Mom, can I get sum-uv-dat bagel again? What Bella calls a bagel is actually a donut. But I can’t convince her otherwise! She has outgrown her FPIES triggers and had … Continue reading This Thing Called Normal
More Than FPIES
Featured Blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. Today, she looks at how we can get beyond the FPIES label and enjoy our children fully. “All I ever really knew about Bella was: her food, her food, her food. And I think everyone who interacts with Bella has … Continue reading More Than FPIES
DO ONE THING: Notes from FABlogCon
Featured blogger Kaylee Page shares her perspective on life with FPIES in an ongoing series. I’m here at FABlogCon. It’s a conference for food allergy bloggers. But it’s so much more. There are bloggers, speakers, authors and medical experts. There are people working real hard to bring innovation to the allergy world. Like gluten test … Continue reading DO ONE THING: Notes from FABlogCon
Building a Bridge to Understanding: Relationships and FPIES
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a physical condition but it comes with emotional—and relationship—issues too. Interactions with family, friends, and even strangers can get mucky and hard. When communication breaks down and things get tense, it’s easy to assume those on the other side are heartless, ignorant or simply lack empathy, right? Even for … Continue reading Building a Bridge to Understanding: Relationships and FPIES